Reasons For Waking

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Reasons For Waking

Reasons For WakingReasons For WakingReasons For Waking
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About Karen

About Karen

  

Karen was born in Quonset Point, Rhode Island, the oldest of six children in a military family. The family moved frequently throughout Karen’s childhood, living in Port Washington, NY: Honolulu, HI; Medway, Massachusetts; Athens, Georgia; Newport and Middletown, Rhode Island; and Springfield, Virginia, where she graduated from West Springfield High School. She was a cum laude graduate of Longwood College (now Longwood University – longwood.edu) in Farmville, Virginia, where she earned a Bachelor of Arts with honors in English. She earned a Master of Arts in Creative Writing from Hollins College (now Hollins University – Hollins.edu) in Roanoke, Virginia, and did postgraduate work in English at Vanderbilt University (vanderbilt.edu) in Nashville, Tennessee.

In 1982, Karen moved to the Atlanta area and began working at the Centers for Disease Control and Prevention (CDC) (cdc.gov) as an Assistant Editor for Morbidity and Mortality Weekly Report (MMWR).  During her 23-year career at CDC, she also served as Writer-Editor for the Center for Infectious Diseases; Managing Editor, MMWR, and Chief of the MMWR Branch, Epidemiology Program Office; and Technical Writer-Editor, National Center for Environmental Health/Agency for Toxic Substances & Disease Registry.  After retiring from CDC, she worked as a freelance writer/editor and editorial consultant in public health and epidemiology, and then as a technical writer-editor and subject matter expert for CDC’s Emerging Infectious Diseases journal, until just before her death.

Karen was passionate about raising, showing, and breeding English Springer Spaniels. She was a charter member of the Chattahoochee English Springer Spaniel Club of Greater Atlanta (cesscga.org). She has been described as the backbone of the club with her strict ethics and familiarity with the American Kennel Club (akc.org) rules and regulations.  She loved the breed and was determined to protect it. Karen was on the staff of Atlanta’s Dogwood Obedience Group (ADOG) (adog-ga.com), organizing seminars and special events. She was also an active member of English Springer Rescue America (springerrescue.org), and the English Springer Spaniel Field Trial Association (ESSFTA) (essfta.org).  

Karen had always loved creative writing.  In the last few years of her life, she completed her first novel, Reasons for Waking, and almost immediately found a publisher for it.  In November 2021, she started working with an editor from Bold Story Press, but her health took a sudden turn for the worse, and she was unable to finish the process. She died in March 2022 after a courageous 18-month battle with metastatic breast cancer.

Karen’s accomplishments, both professional and personal, are particularly remarkable given that she was blind at birth from congenital cataracts. Multiple surgeries before she was two years old restored only three percent of her vision. She never complained; she never sought special treatment or pity. Karen was fiercely independent despite not being able to drive. She loved to travel to dog shows around the country. Karen lived life on her terms, inspiring her family and friends along the way. 

Karens Mom and Siblings

Our Story

  

We are Karen’s five siblings – four sisters, one brother – (from left, Karen, Lisa, Beth, Karen's Mother - Carolyn, Nancy, Lori, David) who have come together to ensure that Karen’s dream of publishing her novel is realized.

In November of 2021, Karen called us, ecstatic that her novel was going to be published by Bold Story Press. Shortly after that, her health took a sudden turn for the worse, and she was unable to complete the final edits. She told us that her biggest regret was that she would die without seeing her book published—so we promised her that we would do everything possible to make her dream come true.

The amazing Bold Story Press team shepherded us through the publishing process and brought us to this point. It has been a labor of love for us.  We are so proud of Karen for what she accomplished, and so honored to have helped make her lifelong dream a reality.

Questions and answers

Why did your sister write this book?

Karen was very close to her five siblings (all younger than her), and she could not imagine losing one of them. But she wondered what if, when they were children, one had died and—worse—their parents refused to acknowledge that death in any discernible way.  Why would their parents behave in such an unimaginable way? And how would she react?


In 2013, Karen’s 20-year-old niece, Jenny, died after suffering cardiac arrest following a surgery. After her funeral, someone asked Karen’s sister (Jenny’s mom) how Jenny’s brother was doing. She said, “Oh, he’s fine.” Karen knew she didn’t mean it the way it sounded, but she was shocked by her answer. Of course, he wasn’t fine.   


Karen wrote this novel to explore the effect of tragedy and loss on family relationships. Also, she was fascinated by how ripples from events that should have no bearing on us and that we know nothing about can affect our lives.

Why are you and your siblings getting the book published?

Writing and publishing this novel was Karen’s dream. She was so close to achieving it; she had a publisher, and was working on final edits when her health took a sudden turn for the worse. She told us that her biggest regret was that she would die without seeing her book published. So we promised her that we would do everything possible to make her dream come true. We are so honored to be able to do this for her, and so proud of her accomplishment. 

How has getting this book published changed your family?

Our family has been through some difficult challenges in recent years that have caused all of us to re-evaluate our lives, our priorities and our relationships. In 2013, Lisa lost her 20-year-old daughter Jenny (Karen’s niece) following a lifetime of health issues from birth. One year later, we lost our dad following heart surgery. In 2020, Karen was diagnosed at age 65 with a very aggressive form of metastatic breast cancer, and she passed away in March 2022. Later that year, we moved our mother, who will be 90 this year, into assisted living. Each of these events caused our family to come together to grieve and support each other. Losing family members re-emphasized how much we love each other and value our family relationships. We had to learn to process grief, choosing to allow it to strengthen us and draw us closer. Publishing Karen’s book has been a journey of healing, a way to stay connected to Karen, a way to honor her life and demonstrate our love for her.


As we talk about the book, we also talk a lot about Karen–reminiscing about our childhood, sharing memories and wondering what inspired various scenes in the book. It makes us wish we could talk to her about it and ask her questions! We had not realized just how incredibly talented she was! Both Karen’s death and the book itself have made us each reexamine how we handle hardships in our lives and the impact on our relationships.


This has truly been a family effort. We have each taken a different role based on our individual strengths, backgrounds and experience. Lori worked with Bold Story Press on the book’s final edits and has been the liaison between the publisher and the family. As the two retired siblings, Lisa and Lori have worked closely together on all aspects of the book, particularly marketing materials; Lisa is a master of getting to the heart of the emotion behind the words. David and Nancy have lent their extensive business expertise, while Beth handles social media and event planning. Our spouses have been extremely supportive through all of this. Beth’s husband developed our website, and David’s wife added her graphic design talent for the website and other materials.  


Although we may each contribute in a different way, we come together for decision-making as a family. Our zoom meetings often turn into marathon chats after the business part is finished. The good news is that we get along well and work well together as a team. We all have the same goal–to fulfill our promise to Karen to get the book published, and to share it with the world! We hope others will love it as much as we do!

Did you know she was writing the book?

Karen told each of us individually that she was writing the book, but not until it was almost completed. She wanted to make sure she was going to finish it–and that she was happy with it–before she mentioned it to us. None of us had read it at the time of her death; she wanted us to wait until it was published. 

Does the book draw threads from your family’s history?

Although the storyline itself is very different from our family’s history, there are certainly elements of the story that remind us of things in our childhood (e.g., holiday traditions and family routines), or of things in Karen’s life specifically (e.g., a small college town in Virginia, a dog with epilepsy and the unwavering dedication of the owner, the main character’s love for horses). We also see glimpses of Karen in Phillip, the main character. Both were devoted to their dogs, both were English scholars, both were introverts of few words, who rarely spoke before processing information.

Your sister had a visual handicap. How did that impact her life?

Karen would hate that we are talking about this, but her very limited vision did have a tremendous impact on her life, which makes her accomplishments even more incredible. Karen was born completely blind and multiple surgeries restored only three percent of her vision. When we were kids, Karen’s handicap limited her activities (for example, she couldn’t play sports), but she had other interests–books, dogs, horses, journalism–that she pursued. She was never able to drive and had to rely on public transportation (and, later, Uber or Lyft) and her friends and family to get where she needed to go. She chose where she lived based on its access to a bus route. While she did require some accommodations at work that allowed her to see what she was working on, she preferred not to make a big deal about it. She learned Braille as a child, and had a white cane, but chose not to use either. She did not like to draw attention to herself, and she found other ways to compensate; she counted steps between places, she always put things in specific places so she could find them easily, she walked slightly behind whoever she was with because she had no peripheral vision. When we watched TV together as kids, she had a specific viewing spot–on the floor immediately in front of the television. When she read books, she often used a magnifying glass and held the book very close to her face; she told us that she didn’t read by seeing letters that formed words, but rather by seeing the shapes of words on the page. When she went off to college, and then grad schools, and then moved to Atlanta, our parents went with her each time to help her get acclimated and help her learn her way around. Her dogs were her constant companions and provided some degree of comfort to her as she adjusted to new places. She did not ever let her very limited vision prevent her from accomplishing what she wanted to do. She traveled, had a large circle of close friends, was actively involved in several dog organizations, and was very accomplished and well respected professionally. Within our family, she was never treated any differently than the rest of us, which is probably why she was so fiercely independent.

Why do you think dogs figure so prominently in the book?

Karen spent much of her life raising, showing, and breeding English Springer Spaniels. Her dogs were very special to her, and were her constant companions. They provided emotional support, and she considered them her family. Karen was also an advocate for maintaining the highest breed standards. She was very involved with several dog organizations, where she had many close friends. Dog-related activities were a significant part of her social life.  

Who took over the care of Karen’s dog?

Karen had two Springer Spaniels, London and Brinkley, at the time of her death. She loved her dogs, and wanted to be sure they were with her to the end so they would know she had not abandoned them. She had provided for their future and had planned for close friends to take them after she passed. Both dogs are now with those friends and are doing well. We receive regular updates on them.

Karen’s friends from her dog clubs really looked out for both Karen and her dogs, and helped her in very practical ways. Towards the end of her life, they went to her home regularly to bathe and groom the dogs, took food and gifts to Karen, drove her to medical appointments, and when she was up for it, took her out for dinner. After she died, they hosted her Celebration of Life at the home of close friends. In January 2023, the Chattahoochee English Springer Spaniel Club of Greater Atlanta (CESSCGA) and the Pembroke Welsh Corgi Club of Greater Atlanta (PWCCGA) dedicated their Specialty Shows and All Breed Obedience and Rally Trials to Karen’s memory. Her friends are waiting with great anticipation to read her book, and they frequently ask for updates on the release. They are helping us to set up a launch party this summer in Atlanta.

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